I thought I had seen Fibromyalgia on here.Are there a lot of people out there with this as well as irritable bowel symptom(IBS)..it seems like they are related.
My husband and I seem to suffer from it,but it is confusing because the Heltroxin was mimicking some of the symptoms for me.

Unfortunately it seems to be a well known fact that some people who were on helltroxin have now got fibromyalgia. I am buying books on Thyroid and fibro for our support group.

I didn't know that,maybe that is another poll we should do??How many people have Fibromyaglia diagnosed since heltoxin???Are you starting up a library for all Forum users or just for your area???

For my area mainly but all you guys are very welcome to borrow them. Think about a poll for that because the is fibyro, irritable bowel, eyes? and maybe others that will never go away.

Best to do that sort of poll when people have an option of medications. By then I should have sorced symptoms that differ from thyroid side effects

........"there are suspected relationships among chronic fatigue immune dysfunction syndrome, fibromyalgia, and autoimmune thyroid problems.
Other diseases that are associated with a slightly increased chance of developing autoimmune thyroid disease include Crohn's disease, Addisons disease, insulan-dependant diabetes, multipl sclerosis, pernicious anemia, scleroderma, and Sjogrens syndrome...............

Scleroderma........ http://www.scleroderma.org/medical/overview.shtm
Sjogrens ............. http://www.sjogrensnewzealand.co.nz/

I know diddly-squat abot fibromyalgia but My Uncle suffers from thyroid problems as well as Crohns disease, (lots of Loosies)
So according to Mary Shomon, there could be a tie up there.

Thanks for that info,I was diagnosed with Chronic fatigue a few years ago as well as fibromyalgia,but managed to get myself back on track,Irritable Bowel,and fibromyalgia also go together,I agree that the body can self heal too with good diet,excercise and fresh air,and a less stressful environment.

That was interesting about scleroderma. I was diaganosed with That a few years ago, I have these horrible looking patches on the top of my arms. I was given a cream to use but it faded but never went away completely. The skin specialist told me only to come back if it got any worse.

It just goes to show this auto immune thing seems to creep in all over the place,doesn't it..I just checked Tru B's link.
Both my husband and I have fibromyalgia and I have a hypo thyroid,I do think that the new ELT crap has made it worse, as well as feeling so tired etc and STRESS is a killer and triggers an attack..I think that one can help manage it by diet so there is some good news,My Father and brother have a condition called Ankylosing spondylitis an arthritic condition(genetic) and I thought I had it and was tested and monitored.the upshot of the tests made me discover that Irritable Bowel syndrome and Fibro Myalgia seem to have a common thread and a lot of bacteria in the gut cause problems..and feed off starch.If you can cut back on certain starches the bacteria can not multiply.these bacteria also have a similarity to certain cells in the body and the immune system then attacks the body as well.

I also manage the Fibro with Echinacea but have recently heard that Echinacea is not good with thyroid probs,especially hashimoto (I have to look into it more) but there is a good book to find out about IBS and Fibro and AS called the IBS low starch diet book by Carol Sinclair..it made a huge difference to both my husband and I,though one has to tailor it to ones own needs etc.I do avoid alcohol and potatoes.hope this helps and good luck.



Last edited by ceramikca on Tue Oct 28, 2008 7:25 am; edited 1 time in total

I haven’t been diagnosed with Fibromyalgia because I have steered clear of doctors. I strongly suspect that I do have either that or Polymialgia. Whichever it is the symptoms are very similar. I have had bad bouts of it and then it has virtually cleared up for a while.

Interestingly, in response to the comments about starch, I am pretty sure that eating bread is really bad for the problem.

I have been helped by taking a magnesium powder in a drink three times daily – called Utra Muscleze and recommended by an excellent naturopath. Also zinc drops and selenium drops ionic form.

I have been taking CoQ10 and an excellent antioxidant - astaxanthin – brand name AstaZan by Lifestream. And finally, fish oil – nine capsules a day, and cod liver oil – 9 capsules a day.

I have an excellent Chinese acupuncturist who has been most helpful in building up my energy. I’ve had badly swollen legs and ankles for some time, but they are getting better.

This has all been exceedingly expensive and I really don’t have money to spare, but for me it has been a far better option than having to take prednisone which is all the doctors can offer for polymyalgia.
My personal philosophy is that nothing is incurable – the power of our minds is incredible if we use it more to its capacity. And that is another journey altogether! But a great exercise to relieve stress is deep breathing. Breathe in peace and healing and breathe out stress and negative energy. I sometimes have my music students sitting on a chair with their arms swinging naturally until they come to a standstill. They let them hang limply until they can feel tingling in their fingers – they then visualize that as negative energy dripping from their fingertips. It’s an excellent way of becoming deeply relaxed in a very shot time.

It hasn't got worse but it is not getting any better either. Every now and then it gets really itchy and nearly drives me mad. It looks awful so I make sure I don't wear any thing without sleeves. I had blood tests and it showed it had not affected any where else.

To all sufferers of Fibromyalgia a great site to look at is www.drlowe.com Dr Lowe workes with Hypothyroid and Fibromyalgia patients at the Fibromyalgia Research Foundation in the US. I have just spent two days downloading papers from his site which is very very informative a must for anyone with thyroid disorder fibromyalgia or chronic fatigue syndrome

Magnesium suppliment a realy good inexpensive magnesium suppliment is Epsom Salts which can be purchased at the local supermarket in the pharmacy section, the packet has tomatoes on it because you can also feed it to your tomatoe plants. It looks like salt, and tasts revolting but I have found that if one heats a little water in a glass in the microwave (20 seconds is enough) then add half a teaspoon of Epsom Salts (magnesium sulfate) stir to disolve it then add a little lime juice and fill the glass with tonic water, you then can not taste the Epsom Salts at all. Half a teaspoon daily helps regulate the heart and one teaspoon helps regulate the intestines as a laxative. I could not be without is as my heart jumps about like ferrits in a sack if I do not take it regularly.

Thanks for the web site..it is interesting indeed.specially about getting ones metabolism rejuvenated..cheers for that.

If you cannot find epsom salts at the super market, the chemist has it. Margaret, I wonder if the garden centre would have it cheaper. Always on the lookout for the least expensive !!!
Here is one of my favourite sites......type in EPSOM in the search thingy. http://earthclinic.com/

Hi, yep Im another fibro/chronic fatigue/ibs/migraine and every jolly thing else that can be thrown at me, including adrenal tumour, and hypo.lol jeesh!
Have to say a lot of the pain is feeling better at the mo, and I dont think its just the change to synthroid, but also am now on hydrocortisone for adrenal fatigue, even though the tests were not too bad. Can never tell which lolly scramble of health probs is causing which daily problem, but ahh well tis the joys of life trying to figure it out.


_________________
Jax

yes the plant centres have epsom salts it is sold along with the fertilisers I have some which I add to the pot plant mix I do not think it is suitable for human consumption though, by the way my pot plants are tomatoes I do not spend time growing things I can not eat, dont like gardening anyway, epsom salts is not expensive at the supermarket though and that is the medicinal one

The Company's newest product, Savella™, a selective serotonin norepinephrine dual reuptake inhibitor (SNRI) for the management of fibromyalgia, which was launched in late April 2009, recorded sales of $9.6 million.

Savella was approved by the FDA on January 14, 2009 for the management of fibromyalgia, a chronic condition characterized by widespread pain and decreased physical function that afflicts as many as six million people in the United States. Savella is a dual-reuptake inhibitor that, in-vitro, preferentially blocks the reuptake of norepinephrine with higher potency than serotonin, two neurotransmitters thought to a play a central role in the symptoms of fibromyalgia. Savella will be marketed by Forest and its licensor, Cypress Bioscience. Pierre Fabre, who originally developed and sells milnacipran outside the U.S., licensed the rights for North America to Cypress Bioscience.

Other drugs already sold:
Forest provides metered-dose inhaler medication, Aerobid® (flunisolide), to help manage the inflammation caused by asthma. Levothroid® (levothyroxine sodium tablets, USP), and Thyrolar® (liotrix tablets, USP). Lexapro® (escitalopram oxalate) for major depressive disorder and generalized anxiety disorder, which together affect approximately 20 – 30 million people in the United States; Celexa® (citalopram hydrobromide) for depression, Forest's high blood pressure treatment therapies—Bystolic® (nebivolol) and Tiazac® (diltiazem hydrochloride)